An assessment of risk understanding in hispanic genetic counseling patients

Jennifer N. Eichmeyer, Hope Northrup, Michael A. Assel, Thomas J. Goka, Dennis A. Johnston, Aimee Tucker Williams

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19 Scopus citations

Abstract

This study sought to identify if differences existed in risk comprehension and risk format understanding between genetic counseling patients of Hispanic and Caucasian ethnicity. A total of 107 questionnaires were collected, 56 from Hispanic patients, and 51 from Caucasian controls. Of the total population 41.1% (44/107) could not demonstrate sufficient risk understanding, which was 71.4% (40/56) of Hispanics and 7.8% (4/51) of Caucasians. Fractions were the best-understood format for all participants. However, both Hispanics and Caucasians had difficulties with the percentage risk format. Discrepancies were also noted in qualitative word format understanding. Awareness of differences in risk comprehension may affect the selection of counseling techniques and strategies utilized by genetic counselors when educating patients about risk related information.

Original languageEnglish
Pages (from-to)319-328
Number of pages10
JournalJournal of Genetic Counseling
Volume14
Issue number4
DOIs
StatePublished - Aug 2005

Keywords

  • Comprehension
  • Cross-cultural comparison
  • Decision-making
  • Genetic counseling
  • Multiculturalism
  • Risk

EGS Disciplines

  • Medical Sciences

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