Financial interventions for family caregivers: A scoping review

  • Megan Thomas Hebdon
  • , Carolyn Phillips
  • , Amy Patten
  • , Katherine Doyon
  • , Tamryn Fowler Gray
  • , Shaowei Wan
  • , Lee Ann Johnson
  • , Stacy M. Fischer

Research output: Contribution to journalReview articlepeer-review

Abstract

Financial challenges are a significant issue navigated by family caregivers of individuals across the lifespan due to employment challenges and costs of caregiving, yet there are no scoping reviews to summarise financial interventions for family caregivers. The purpose of this scoping review is to understand the nature and effect of financial interventions for family caregivers. This study used the Arksey and O’Malley framework to conduct a scoping review. A systematic search for articles across multiple databases and grey literature was conducted. Articles published from 1997 to September 2024 were included for the review. After the title, abstract and full-text review, 11 studies of 2774 remained for data extraction. Data from articles were extracted and summarised for financial intervention nature, scope, measurement, effect and health system context. Ten articles and one dissertation synthesising findings from randomised controlled trials, quasi-experiments and one natural experiment were included. Financial interventions ranged from embedded supports in larger programmes (n=8) to stand-alone initiatives (n=3) across diverse health conditions and economic contexts. Some studies noted improvements in mental health, caregiver preparedness and cost-effectiveness. Direct measurement of income or perceived financial well-being was not assessed as an outcome. Findings suggest diverse approaches for financial interventions with an opportunity for more direct assessment of financial outcomes. Palliative care team members can use these findings to build interventions and initiatives that address the financial needs of family caregivers.

Original languageEnglish
JournalBMJ Supportive and Palliative Care
DOIs
StateAccepted/In press - 2025

Keywords

  • Family management
  • Palliative Care
  • Quality of life
  • Social care

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